Posted in Autistic Spectrum Disorder, Mindful parenting, Premature birth
Tags: ASD, Autism, Autistic Spectrum Disorder, Inspirational

|
All credit goes to Lisa Nolan for researching and sharing her knowledge of these books with us
|
The other day something unexpected happened. We had ventured out on a walk with friends in an attempt to catch the last of the little snow we had in this neck of the woods, when we came upon a cat lying dead in the road. It had obviously been hit by a car.
As one of us knocked on the cat owner’s door and gently broke the news to her, I found myself attempting to explain to Josh what had happened. Death is not new to Josh; we have cats who frequently deposit delightful presents on my doorstep, that include dead rabbits, rats, mice, voles and birds. Josh has witnessed me ‘dealing’ with the carnage for as long as he can remember.
For want of anything better, and without being sentimental about it, I have found myself explaining death in a matter of fact way. ”The breath has gone”, I often say,” no more breath “.
When we found the cat, Josh was at this point telling me that the cat’s breath had gone, as had his heart ( if, indeed, it was a he ). Meanwhile, my friend was telling his kids that he was sure the cat had gone to an even better place. Now this I liked, and wanted to elaborate, but found myself utterly stumped as to how to go about it. As a buddhist, I do not believe in Heaven exactly, which would be perfect for the telling when it comes to children. And I’m honestly not sure about a feline Nirvana in the great scheme of things. But, you know, I wanted to have come up with something that would linger awhile in the minds of the little ones, but not totally freak them out! So, my question is, how do you explain death to a young child? Or, how do you explain death to an Autistic young child ?
Still, we had a good lesson on road safety issues that the other kids most certainly would have taken in, even if Josh didn’t quite make the connection!
There have been moments when I have questioned Josh’s diagnosis, and wondered if the professionals had got it all wrong. Today was not one of those times. Today Josh attended Kindergarten for the first time, and he didn’t say a word the whole time he was there. He stood and stared, he sat and stared, and not once did he interact with the other children. It was extremely painful to watch, and even more difficult to absorb.
I watched as the other new children initiated tentative conversations with each other, and began to separate into small groups of new found friends, yet all I saw was Josh standing alone, always alone.
When they went for a walk and a play outside, I kept a distance and saw my little fella standing by himself looking utterly lost, and when I went to him he buried his face into my shoulder , clung on for all he was worth, and whimpered.
I think the most painful aspect for a mum with an autistic child is the thought that there may come a time, perhaps in the not too distant future, when their child begins to get a sense of how alone they sometimes are, and with that realisation,a feeling of loneliness. Today, I felt Josh’s differences acutely, and longed for him to simply join in with the other kids. I wondered, too, for the first time, how he will be affected by this disability in the future, as I see younger children begin to catch up with him in many ways, while his direction is still very much unknown.
Josh was unable to complete the session, despite a small group, and the Kindergarten teacher kindly suggested that he leave the session early.
I know it is early days, but perhaps there was also an element of me hoping for the best; a small, quiet, Steiner Kindergarten, with an attentive experienced teacher, in a beautiful setting, with children he already knows. Perhaps things will turn out well for Josh here. But, perhaps they wont, afterall. Ho, hum, best not make any plans for the moment.
I believe tomorrow I will be more positive, because I have to be. However today, just for now, I have mixed emotions, and the overriding feeling I am left with is one of deep sadness.
This is our 22 foot wide yurt that Josh’s Daddy helped make a few years ago, that has, like myself, retired from the festival and party life, and now lives up at the woods.Ok, I don’t actually live in the woods, though have spent many a night there. Thank God for the compost loo!!!
It has a HUGE chimney for the central fire, around which we can sit and eat and work and keep warm!
It has two doors either side, and mouldy old sides that need to be proofed!
The view of the wood from one of the doors
Looks like a UFO has landed!
Christmas over…phew! As anticipated, Josh took very little interest in the event. He was delighted with the satsuma at the bottom of his stocking, oh, and the ride in the car to Grandpa’s house was a hit! But the bike, the Christmas tree decorations, the exightment of the festivities just didn’t do it for him.
I attempted to make it special, we listenend to carols, visited Buckydoo Square for the annual mulled wine and Christmas craft fair, and, as every year, we went to see the beautiful Christmas tree festival in the church in Bridport; one hundred and twenty Christmas trees decorated by different charities, schools, playgroups, hospitals, etc ( I wish I had taken my camera )
As usual, I felt moved to tears as we approached the alter, and Josh and I made a wish that all the hungry children in the world will have enough food and their bellies will be full ( which Josh finds very amusing, taking it all quite literally, you understand! ), yet those tears were NOTHING compared to what happened two minutes after we left the church……..
There I was staring in wonder at the candle light, the handmade decorations, the abundance of colour, effort and love that people had put into making their tree special, and revelling in the genuine spirit of the occasion, not realising, of course, that poor little Josh was struggling to process the visual overload; for him too much to look at, too many colours and lights and by the time we had left the building and were crossing the road he had hit the wall ( the road surface, to be precise ) and was totally out of control! He attempted to run into the oncoming traffic, screaming and biting as I tried to drag him out of danger. He then broke free, and proceeded to run into the window display of Peacocks, thwarting their attempt to win best dressed Christmas window display in one fowl swoop!
And so , on Boxing day, we took him away from the bright lights and jingles and all that stuff, and went for a nourishing walk in the woods;
We have had a quiet, close, huggy Christmas Eve this year, about as perfect as it could be. The boys and I shared a simple but delicious meal, then snuggled together on the sofa and chatted and laughed, as we opened and shared our humble pressies with each other.
And everybody went to bed feeling happy. Bliss.